She did in fact have a stroke. It was a very large one, but the most common variety of neonatal stroke. It likely hapened right at birth, which they typically do, aparently. They don't know why they happen - it's an area of study for many universities, because there's such a pattern to it, but no-one knows exactly why it happens. They think it may be clots from the placenta escaping, as it detaches during birth. But they just don't know.
Her blockage was in the most common spot - in the central cerebral artery, I think it's called. It's the biggest of three arteries that feed the brain. Because it was such a large blood supply, the damage is fairly extensive - this was no mini-stroke! But it's isolated to her left side, which is good news.
Many of them are diagnosed right at birth, because the stroke often causes seizures, as early as a day old. When they see that, there's an MRI immediately. Other kids, like Joan, either never have seizures, or the seizure that typically comes shortly after birth is so mild, it's missed. In that case, the diagnosis is made when it was made for her - when it becomes obvious that the motor skills are delayed. There's a 10 per cent chance of her developing seizures. We've been told what to watch for, but because it sounds like she has yet to have one, her chances of developing them are small.
The prognosis:
- She should be able to lead a normal life, though any Olympic aspirations may never be realized.
- She will walk - probably by the time she's two.
- She will always have a weak side, which will probably result in a limp throughout her life
- She'll need to be in physiotherapy for most of her childhood, and possibly into adulthood.
- Mentally, she should be completely normal
- She may struggle in school, once more complex subjects start, such as math, reading and writing, which require both sides of the brain.
- Those difficulties may range from mild - that she just needs a lot of encourangement - to moderate - where she needs a tutor or at the worst, a modified program. That said, many kids never have any trouble in school.
- They'll do an extensive assessment when she's 5, to determine where she's at, and what, if any trouble spots, she has.
- She MAY need a speech therapist. The neurologist recommended it, to ensure she's on track. The therapists are leaning that way, too, but want to watch her a little longer.
We also saw the therapy team the same day. They're awesome! Here's a few of the things that came from that:
- She will need braces for both hand and leg, but not for a couple more months.
- She'll likely be getting a walker, to help her get around and build leg strength.
- They gave us a million stretches to do - she's lost a lot of range of motion - these will get it back.
- They're going very intensive to start - stretches at least 3x per day, and her next appointment's in two weeks - to get her to the level of flexibility they want to see.
- She's been referred to the neuromotor clinic as well. They'll mastermind all of her therapy, from physio to bracing to surgery, if need be, to keep her body growing properly.
- The "tone" ie how she clenches her fist a lot of the time - can, over time, cause skeletal deformations. The neuromotor clinic's job is to prevent that, and if it happens, to treat it. She may need orthopedic surgery down the road, but they do everything they can to prevent that, obviously.
That's about it, in a tight little nutshell. It was a lot to take in that day, but with time, we're feeling better about it all. There's a lot of guilt for us - me especially. There's been a lot of "if onlys" running through our minds. Like if only we'd taken the C-section route, instead of induction, this wouldn't have happened to her. But I guess we can't dwell on that stuff.
In other news, our building is up for sale. Yay. The owner died, and her son, who she left it to, doesn't want it. We got the news just as we got home from the hospital. So we were already having a pretty blue day, and then got that blow on top of it all. We thought we'd be out of a home, so we started loking around for a new place that night. But according to Alberta law, because we had a fixed lease, we're safe. The new owners can't evict us without cause, or raise our rent, or cut our lease short - they have to adopt the agreement we signed with the previous owners. So we're safe, at least until December, so it's not too bad. It could be much worse. We've had one showing, but no more on the horizon yet. The agent said things have gotten bad in Calgary over the last six months - property isn't the hot ticket it used to be, and buyers are refusing to pay the big money. Our place is listed at $599,000, which is higher than the assessment says it's worth right now. When we first moved here, tiny single-family bungalows were routinely being listed at $700,000. But they had already stopped selling for that cost, so they just sat...and sat...and sat....A handful have actually sold, but I doubt it was for anything close to full asking.
John's doing great. He's in a letter phase right now. He actually ate a slice of pizza into a T shape. I know my mom will get a kick out of that story - Uncle Adrian did that when he was a kid too. So John's inherited more than just his obsession with bodily functions!






